Kalydeco: A ‘miracle drug,’ with a catch, The Globe & Mail

Like many 21-year-olds, Kelsa Hague is trying to figure out her career, hang out with friends and care for her assorted pets. But unlike other people her age, she is also waiting for a drug that could save her life.

It’s called Kalydeco (trade name for ivacaftor), and it’s being heralded as a “miracle drug” by cystic fibrosis patients who have experienced its life-changing effects. But this miracle comes at a cost of more than $300,000 a year, and while Kalydeco was approved for use in Canada in 2012, it has not been covered by the health-care system. Read more…